For children who live with a chronic illness, each day is filled with endless treatments, painful symptoms,
confusion, and embarrassment. How can an eight-year-old girl understand diabetes, let alone explain to her schoolmates
why she has to leave class to have her blood tested? How can the father of a child with asthma ever sleep soundly
through the night with the fear that his son may suffocate in the next room?
In this book, Cindy Dell Clark tells the stories of children who suffer from two common illnesses that are often
underestimated by those not directly touched by them--asthma and diabetes. She describes how play, humor, and other
expressive methods, invented by the children themselves, allow families to cope with the pain. Her interviews with
forty-six families give readers an understanding of how children comprehend their illnesses and how parents struggle
to care for their sons and daughters while trying to give them a "normal" childhood.
Chronically ill children are at a greater risk of developing mental health or social adjustment problems than their
peers, and asthma has been gaining ground in both incidence and fatality in recent years. This eye-opening work
emphasizes the importance of improving the lives of these children by understanding their perspectives, both imagined
and real.